Disclaimer: this is a long post...feel free to skip down to the big bolded letters if you don't want to read about our saga with Peter's health issues...
From the early days of our marriage, Peter started experiencing health problems. As an English major, I felt overwhelmed trying to understand what the doctor told us and decided to learn a little about the human body and how it worked (or didn't, in Peter's case). He has had a range of diagnoses...from Irritable Bowel Syndrome (read--we have not clue what this is, so we'll give you a blanket diagnosis and send you on your way as clueless as we are) to eventually Crohn's Disease {feel free to do a little search on google to do a nice read on what his symptoms were}. The first Gastroenterologist, who we went to see through a referral from our family doctor, did suggest some diet changes, and Peter noticed that some foods seemed to aggravate his symptoms. Nothing improved, however, so we went in to another doctor for a 2nd opinion. Gastroenterologist #2 told us it was ulcerative colitis and said diet had nothing to do with it, but gave us some nice, expensive medications with terrible side effects. In the end, Peter decided that his illness was better than the side effects of the sulfa medications.
We moved two states away, made a few simple diet changes and crossed our fingers. I bought cheap, used copies of any book I could get my hands on that mentioned ulcerative colitis from amazon.com and did a lot of reading. Many of the books suggested specific diets, and we tried a few of them. The
Specific Carbohydrate Diet seemed promising, but left Peter with very few food options and was hard to stick with.
As we learned later when he received a Crohn's diagnosis, it is normal to have ups and downs with the disease, where he would enjoy times with very few symptoms followed by terrible flare-ups. After suffering another bout of flare-ups and then a nasty flu bug that passed through our whole family, we tried
a mostly vegan diet (another
good link with similar information). I loved it, but it was hard for everyone else. We stayed on it for about 10 months (during which none of us got sick...nice), but that all ended when I got pregnant again. My ability to prepare any food was nixed and so we reverted back to quicker, easier convenience foods. Can you guess what happened with Peter's gut?
That pregnancy ended in a miscarriage, we moved into our first home, and then we found out we were pregnant again a couple of months later. Did I mention that stress also seems to exacerbate Peter's symptoms? Being of a noble character, he suffered quietly for quite some time. I tried to broach the topic, but I think he was afraid of me pulling out the vegan diet again and turning into the food police. He was losing weight and starting to look sick enough that people noticed and asked how he was doing. I admit, I pushed things a little and expressed my concerns to his parents and our Bishop (whose son has Crohn's). Poor Peter was now under their scrutiny and agreed to go to yet another gastroenterologist, for yet another colonoscopy and upper G.I. endoscopy.
Peter's mother watched our girls while I took him in for the tests. When they wheeled him out, he looked so helpless lying there under the anesthesia. The anesthetist came out to tell me that Peter just wouldn't go under, so he had given him "a larger dose than I've given anyone in a very long time." He wanted to let me know Peter would probably be out for quite some time. I tried to read my book, but had this cold lump in my stomach. The doctor came out and looked grave. He showed me pictures they took and said, "I'm sorry. Your husband is very sick. This is not good." I wanted to cry, but instead tried to look like I was holding it together while he explained what he saw. He took biopsies, but felt that even without those results, he was confidant that Peter had Crohn's, as well as celiac disease, serious damage in his stomach and esophagus from GERD and Barrett's esophagus. Then I really wanted to cry. Barretts' esophagus meant pre-cancerous cells. He explained the tremendous odds that Peter would have full-blown cancer somewhere in his digestive system, probably sooner than later. Whew.
Peter finally woke up a little and asked me what they told me. I didn't want him to know the gravity of it yet. We wheeled him out in a wheelchair (which he is bummed that he doesn't remember) and I took him home. I had to pull over for him to throw up a few times on the way home. He tried to chat with his mom when we got home, but ended up going to the bed to sleep. When she left, I left him sleeping and took the girls to the store to fill the prescriptions--a strong steroid, another sulfa medication and a medication for the reflux. The lady ringing me up gave me the total of something just over $500 (for a month's supply) and I said, "Oh, I'm sorry. I must have forgotten to give my insurance." Nope, that was after insurance. I remember thinking that there was no way we would be able to afford these medications that my husband so desperately needed. Fortunately, the Bishop's family knew that if we filled a 90-day supply through the mail, it was much, much cheaper. That was a huge relief, but I was still scared. Peter did get a blessing from his Dad, and I prayed and prayed for a miracle.
When we went back in to the doctor, he seemed perplexed that all of the biopsies came back negative. But he did not want us to get hopeful. He felt confidant that he had seen signs of each of those illnesses and officially diagnosed with Crohn's. He took the medications and thankfully, did not have the terrible side effects like he had with the previous medications. Even on those medications, however, there were still ups and downs and we knew from our research that the meds would only be a temporary fix. Especially the strong steroids were dangerous to stay on long-term and the doctor was weaning him off of those as quickly as possible. As he took a smaller and smaller dose, the flare ups were worse and worse. The projected path with that route of treatment was to use these drugs off and on as symptoms recurred, then to move on to stronger and then stronger meds as they stopped working. Eventually, we could most likely expect portions of his bowel to be removed and even to have it removed entirely and have a colostomy bag instead. In addition, the incidence of colon cancer in someone who struggled with years of Crohn's flare ups is very high.
I had read
another interesting book that suggested that animal products were something we could include in a healthy diet for Peter. We found
a book written by a man who had also suffered from Crohn's, who had brought about full recovery through diet and homeopathy. Both of these books suggested a similar diet, and it was one that sounded palatable to Peter. We decided it was worth a try and began to follow their recommendations in earnest. It worked! Many of the meal ideas also went along with those included in the first book we tried, the Specific Carbohydrate Diet. When they differed, we just did what Peter felt would work best in his body. He took probiotics, a homeopathic anti-inflammatory medication and added flax seed oil to his diet. And he has felt stronger and healthier than he had in years and he gained back a lot of the weight he had lost (and as a side benefit, I lost a lot of the weight I had been hanging on to from baby #4).
While the different books we read and the diets we tried seemed to be very different, we noticed a few common threads: no white sugar, no refined white flour and no processed foods. Whether or not the diets included animal products, they all asserted that our diets should be from whole foods, grown as naturally as possible and consumed as close to their natural state as possible. Whole, real foods were our measure. Even with the addition of animal products, the bulk of our diet came from plant foods. As we ate healthier, we felt better and kicked some of the nagging cravings that kept up bound to the standard American diet.
Enter the crazy experiment!
As we were eating healthier, it was insane to watch how much junk food our children were consuming from outside of the home. As Halloween came and the other holidays approached, we started to muse, "I wonder how much junk our children consume between Halloween and Christmas?" They left their candy out for the "Sugar Plum Fairy" on Halloween night and she left them a little toy in return. They didn't seem to miss the candy much and their behavior was better.
We decided to see if we could, as a family, go without any treats...that's right, no sugar or refined flours. We made a paper chain and did a countdown from November 10th to December 25th. We told the girls that if they would just bring home the treats they were offered (or just tell us about them if they passed one up) we would take them to a hotel with an indoor swimming pool and have a little vacation as a treat. I decided to keep track of it all on the fridge. I knew it would be a lot, but even I was just literally astounded. Previous to eating healthier, we were having a big treat every Monday night and having some sort of a dessert after nearly every dinner. We also pigged out on the treats at Peter's mom's house every Sunday.
You can see my whole chart here. But the summary is:
Our three children were offered...
a total of 41,734 extra calories; 1,927 grams of fat; and 6,470 grams of sugar!
I figured that this was about 25% of their daily allowance for calories and 35% of their daily allowance for fat. (And this is following the guidelines from the USDA, which are not necessarily the healthiest goals). I couldn't find a RDA for sugar, but the sugar grams they would have eaten per child would have been somewhere near 16% of their daily allowance for carbohydrates. And these were empty, nutritionally void calories. If we had also been eating treats at home as we were previously, I am certain that these numbers would have been double. That's 50% of their daily calories in sweets, 70% of their daily fat in sweets and 34% of their daily carbohydrates just from sugar.
Sorry if I've scarred you for life. Our next goal is to go through the end of March and the girls will earn an ice-skating trip. Sorry, this only works if you are lame and boring. Then the rewards seems exciting.